Why do some people not believe they have dementia?
Damage to the brain can cause people with Alzheimer’s, dementia, stroke, brain tumours and other cognitive impairments to believe nothing is wrong with them. When this happens, it is called anosognosia (ah-no-sog-NOH-zee-uh), meaning “to not know a disease”; important to not be confused with being in denial.
Anosognosia is a condition that causes someone to be unaware of their mental health impairments and how it affects them. The unawareness can be related to memory, general thinking skills, emotions or physical abilities.
However, anosognosia symptoms may vary significantly from person to person, change over time, and even fluctuate within a day.
That person may sometimes understand what is happening and, other times, firmly believe they are completely fine. On the other hand, an affected person might only be partially aware that something is wrong. Like dementia, in general, it is best to remain flexible with the cognitive changes.
Anosognosia in dementia is not denial – when someone is in denial, they are aware of a fact but refuse to accept it. With anosognosia, the damage that dementia causes in their brain make it impossible for them to be fully aware of what is happening to them.
It is important to distinguish between someone in denial and someone who has anosognosia in dementia. Those with anosognosia are not just being difficult, so what to do?
Read on for 6 top tips for managing these difficult symptoms.
Six Tips for Managing Memory Loss In Your Parents
1) Do Not Try to Convince Them They Have Dementia.
Using reason and evidence to explain or attempt to have them recognize the symptoms will not help. It will only upset them and will likely make them even more convinced that they are right and you are attempting to discredit them.
A far more effective strategy is to discreetly make changes that will help them live safely. Stay calm above all else, focus on their feelings keeping your comments subtle and as positive as possible.
2) Work With Their Care Team.
When your older loved one’s dementia symptoms interfere with their daily lives, it is important to start working with their care team – including doctors, relatives, friends, caregivers.
Do not wait for a crisis to occur! We cannot stress this enough; it is one of the most frequent problems we see. Family and friends do not want to make waves – tragically, a crisis occurs often, resulting in being too late to make the necessary adjustments to live safely.
When a crisis occurs, your options are minimized or gone altogether.
3) Discreetly Make Their Life as Safe as Possible.
Making your older adult’s life simpler and safer can prevent someone with anosognosia in dementia from hurting themselves or others. Some try to drive, manage money, cook, forget their medication, walk outdoors alone, or perform other dangerous activities and expose their vulnerability because of their cognitive impairment.
Use positive approaches without mentioning dementia as a justification to prevent problems in making their lives safer. Finding ways to preserve their pride will be most effective.
Perhaps you might say you dislike eating alone or you would like to spend more time together, so you want to eat dinner with them. Or that you have some great recipes you would like their opinion on, so you can leave prepared meals in the fridge during the week.
(Be careful here, as many often forget to check in the fridge, do not remember how to put on the incontinence garments, or what to eat to remain healthy. These are indicators your loved one needs more assistance at home or assisted living services)
How to introduce a caregiver – maintain their dignity & independent living:
- Start slowly with gradual increases.
- Say it is for you rather than because they need the help.
- Use a doctor’s authority saying “Dr’s orders”.
- Use housekeeping needs as an excuse.
- Pretend it is a free service.
- Tell them it is temporary.
- Introduce the caregiver as a friend who needs work and you want to help.
4) Avoid Correcting Them & Having Confrontations.
When someone has dementia, their brain may experience a different version of reality because of the damage the disease has caused.
Dementia care experts recommend stepping into their reality rather than trying to correct them. Their brain loses the ability to process information, and attempting to force them to join the real world will only cause confusion, anxiety, fear, and anger.
Try to solve as much as you can without them knowing – stress only makes challenging dementia symptoms worse.
5) Present Solutions Subtly & Positively
If your parents feel they are being limited for reasons they can not comprehend, the less likely they become angry and defensive to resisting help.
- For example, for a positive spin, you might say, “let’s go for a walk together. I need the exercise” rather than “you can’t go for a walk alone, I have to go with you”.
- Provide incentives; “Let’s clean the house together so we will be done twice as fast in time to watch your favourite movie.”
- Reminding them about medication can also be done positively. You can say, “it’s time for me to take my medicine”, and you take an M&M or something of the like to keep the focus off them needing help and reminders.
6) Learn More About Dementia & Dementia Care Techniques.
The most effective dementia care and communication techniques are not always easily figured out. Learning these techniques can prevent frustration and stress for both you and your older adult.
Skilled memory care techniques or assistance from our team can provide you with the necessary relief and safety for your loved one to improve you and your parents’ quality of life.
The Manor Villages combine elegant senior living with quality care. We’re the community with heart. To help you navigate anosognosia and memory loss with your elderly parents, contact The Manor Village at 403-686-8386.